We just wanted to let you all know that our first night with Abby home was great. She spent most of the night and early morning awake and looking all around. We know it will take her a little while to get use to things here at home. Bella did very well with Abby. She came in the house, sniffed Abby, and then went on about her business. She was more interested in sniffing everything else.
Since we got little sleep last night, it made today seem like a longer than usual day, or maybe that was hearing more bad news. I don't know what to say about things with Emma other than I'm so sick of her having to go through so much. I know I should't be, but I am tired, sad, and pissed that my little girl has to endure so much crap on a daily basis. She had a full body (pretty much) ultrasound yesterday to look for fungus balls. Thankfully none were seen. Today one of her cultures had grown out. This lead the docs to performing a lumbar puncture on her. The lumbar puncture is supposed to give us an idea of what antifungal medicine will work the best and the severity of the infection. Her tummy surgery has been put on the back burner, and we are looking at being on a course of antibiotics for 3 - 6 weeks (if we are lucky). That means our sweet girl won't be home anytime soon.
I know that from every experience we learn something, but honestly, what else do we have to learn. We've learned that life is precious. We've learned never to plan. We've learned we have each other. We've learned that strangers comments mean so much. We've learned that you never run out of tears. We've learned that when you least expect it things will change. We've learned that everyone is fighting a different battle. We've learned we are not alone. I know that there is always more to learn, but it's summer and school is out.
Just stop...
10 years ago
6 comments:
The highs and lows, lack of sleep, emotional rollercoaster, etc. is just too much. I know it is. I am not sure I have ever prayed so hard as I have and currently am for Emma. I pray for you all and Abby, don't get me wrong, but there is not a second I don't think about her...if only one of us could step in for her and take away some of her pain. Please take care of youselves. I know how exhausting it is having one baby at home who needs to eat all of the time and doesn't understand night from day...I know that trecking up to the hospital every day to be with your other precious gift will be so much. Don't be afraid to ask for help...it is here. We love you. The Arens
First of all, how wonderful that you have Abby at home with you..don't worry, she WILL sleep all night one of these days but I can guarantee you that you won't at first--you will be waking up to check if she is okay. It goes with the territory of having a new baby in the house!! And then the first time you do sleep thru the night, the first thing you will do when you do wake up is jump up and check on Abby..AND then celebrate that milestone! It has happened to us all..just ask your folks.
I am so sorry to hear about Emma and I can well imagine how you feel..it seems that if anything else can go wrong, it will...but just like Abby sleeping all night, the first time you get an all clear for Emma, you will have a hard, but very happy, time accepting it. But it WILL come. In the meantime, don't try to do everything like you have been..as long as you are at the end of the telephone, you will be in touch and be able to be with her in moments if needed.
There is no question in my mind that you are not two of the strongest young people that I know..and I am so proud of you both. Everything is going to work out in your favor and in the meantime, live,laugh and love, Vonnie
I wish I had some words of wisdom, or just the right thing to say to bring you both some comfort. All I can say is you will continue to be in our hearts, thoughts, and prayers and we are just a phone call away if you need anything. - J & E
Both of those little girls are so lucky to have you as parents. Hang in there...cherish the happy moments and love each other like crazy!
Just checking in to say hello. Thinking of you often!! Corinne
You two have been through so much the past several months. As a parent, I just know that when our children hurt, we hurt so much for them. It is such a helpless feeling to see your child go through things and not understand why they have to continue. Your faith has been tested over and over again and you both still give it all over to the Lord. It is normal to wonder why and to be frustrated at what Emma is going through.
I believe these two girls are both where they are at today because of the love of their parents and family and the prayers of so many. I believe Emma will make it through anything....she is one tough little girl. I guess the one thing about things like this happening to them when they are so little is that she will not remember any of it when she is older!
I continue to pray for you guys. God is good!
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